A break anytime soon would be nice, please?

Decided to give the hospital a call this morning to chase up my surgery date, it can't hurt can it?

Remember I was told last week that it would be 8-10 weeks for surgery, which would take me to around November, which sucks as our lives are on hold until then, but it wasnt too bad as we had the holiday and anniversary to look forward to in the mean time.

Well, I was just informed this morning that "It will be a while yet, closer to 18 weeks" as since last week I was down-graded to 'Non-emergency'.

Non-Emergency?! I was admitted and spent 3 days on a shitty hospital ward hooked up to a drip under going test after test and have a severely diseased organ in me which doesn't work, and have been told an attack WILL happen again, but they don't know when, and I'm fine to leave for 18 weeks? What do I need to do, to have it done sooner?

18 weeks

Shoot me. Shoot me now.

18 Weeks takes us up to the end of December. Can you imagine having surgery around Christmas, not to mention we were planning on starting IVF in the New Year.


That isn't going to happen

Edit: A good friend of mine suggested I call the IVF Clinic to discuss it with them, which was very sensible advice. (Thank you)

So I called Assisted Conception Unit to ask them what the hell to do. We were originally assured we would have surgery in the next 3-4 weeks, so a follow up appointment was made for September 5th with our FS. This was then pushed back, by the clinic, to October 7th due to a double booking. Normally this would have pushed me over the edge, but given the wait for surgery had gone up to 8-10 weeks that morning it wasn't too bad.

I called to inform that I had now just been told it would be closer to 18 weeks as they've now deemed me a 'non emergency' and how to move forward.

It never occurred to me about funding for treatment before all of this.

The receptionist explained that when you get the go ahead for funding, it is only valid for 18 weeks. As we won't be having treatment in this time we would need to meet with the finance manager of the clinic, and the doctor, to discuss our "future at the clinic, and any possible treatments" She said she thinks we can just re-apply for funding, but with the recent changes she can't give any definite answers either way.

They're both on holiday until 27th August, so I can't speak to them for 2 weeks to make an appointment.

So now we have the long wait for a cholesestectomy, and and even longer wait to find out if we can even re-apply for funding for IVF.

Before ANYONE says that we'll be fine, I agree, the chances are we will be fine and it will be simple paper work and reapplying for funding. The sensible side of me knows this and agrees.

But the woman whose spent 3+ years in hell, lost a baby, lost almost 2 years of her life to a 'mystery illness' that was mis-diagnosed for 24 months, was so excited to begin IVF and a new chapter then have it taken away, to now be told there is a minute chance we will now have funding for IVF taken away from us, with my future as a Mum is absolute jeopardy all at the age of 25, when I should be in the prime of my life.

This lady is asking you to put yourself in her position, with even the smallest of chances that they could say no, even the smallest, and then wait x-number of weeks for an answer, and see how you would feel.